When the Train Changes Tracks Again…

Today was one of those days where I know I need to write a post but I’m overwhelmed to the point I am worried my fingers won’t represent the sheer emotions that we are experiencing at this moment. Here goes nothing…..

Today Trenae and I both took off from work to have a “day off” for doctors appointments. I put it in quotes because it felt more stressful and strenuous then any day of work I have experienced to date. We have been really looking forward to our first appointment with our fertility doctor. After all we thought we stepped foot off this ride a long time ago until we recently received the very generous gift of an embryo from a loving couple that shall remain anonymous. But back we went with the hope and joy that this is the one thing we had been waiting on for what feels likes an eternity.

The appointment went really well…… or so we thought. Our doctor went over our charts and said everything looks great, this would be a great option for us and the probability is about 50% (doesn’t sound high I know but when your probability is zero for so long 50 is huge). Trenae went on to explaining to our doctor that she had a surgery in August and thought it was just like the ones she had before to minimize the pain from her endometriosis. She said the word “ablation” and suddenly the conversation tone changed like when a bad thunderstorm is coming in and you feel the winds shift. Our doctor said he needed to know more about the surgery and if it were the kind he was thinking that we wouldn’t be candidates for a donor embryo because it would have taken away Trenae’s ability to carry a baby at all. We continued on the conversation saying it wasn’t that kind of surgery because we had communicated to her OBGYN our strong desire to be parents if by the stroke of luck a miracle happened. Our doctor felt confident in what we were saying because we were confident it wasn’t that kind of surgery. We left there elated thinking this might be it for us that our ride is finally coming to a stop and we are walking off it rather than falling like its felt for the last two years now. Until our next appointment….

We went to our next appointment with a pelvic pain specialist because since the surgery in August Trenae has had unbearable pain, and I mean what I say there. I have watched my wife cry as she goes to the bathroom, sneezes, and even just stands for a period of time. We went back to her OBGYN after post op and told her all these things and she said I just don’t know, maybe take some Tylenol and use a heating pad. We were in her office for all of two minutes until she dismissed us doing nothing. That’s when it hit me in the parking lot I wasn’t going to stand for this and that something needed to be done. I walked back in with my wife and told the receptionist they weren’t billing our insurance until we had answers and my wife felt relief. Finally she sent us to the amazing doctor we saw today and said we just need to get you pregnant (you’ll see the irony in this statement later). We meet with Dr. M and he reviews Trenae’s file and goes over everything with her to make sure he has the full story. He says to us I see here that you had an “endometrial ablation.” I think there’s that word again, you know the one that if you had this surgery you can’t carry a baby. Trenae looks at me in sheer panic and says to the doctor I thought I had the same surgery I did before just to remove the endometriosis because I told my OBGYN that I wanted to get pregnant. He says no I hate to be the bearer of bad news and it pains me to tell you this but yes you had an ablation and no you can’t carry a baby… see the irony in her statement? I see the sadness engulf my wife like a dark dense cloud. She says I wouldn’t have done the surgery if I had known that, how could this be, I told her over and over we wanted to get pregnant. I sat there holding my wife’s hand feeling the grip get tighter and tighter. Dr. M kept apologizing and said lets see if I can help with the pain at least and you can speak to the fertility doc about the other issue. He exams her and does a couple different test to see what her pain triggers are and tells her to get dressed and for us to meet him back in his office. Now before the exam he told us he thinks it might be nerve damage but won’t know until the exam and when we go back to his office he says I think it may be what is called Adenomyosis. For those of you that don’t know what that is its basically when the endometriosis goes into the uterine wall and into the muscle tissue causing pain and lots of other issues. The crazy thing is before he said that I told Trenae on the way up that that’s what I believe she has through the research I had done. He immediately sent her to the building next door to have an MRI so we can figure out what next steps are. He says if it is in fact Adenomyosis the only option is a hysterectomy. At this point we are both feeling like we’ve been trampled to death. We started out our morning thinking our prayers have been answered and we will be able to have the baby we have yearned for to find out that her OBGYN took that from us and now she has to have a possible hysterectomy.

It is very hard to not feel like you are drowning in this situation. I tried so desperately to stay positive and think that some higher power whoever that may be is telling us we are supposed to adopt and even though we try and derail the path of the train we are being taken back to the original path, but lets be honest it doesn’t make it hurt any less. This news has wrecked both of our worlds, and there’s nothing we can do about it. So now what? we wait for the results of the MRI and go back to saving the crazy amount of money it will take us to adopt. We will have our baby eventually its just painful to feel like the medical system has now failed us. I was okay when it was me it had failed and my doctor ruined my chance of being able to conceive but now another doctor has ruined my wife’s ability to carry because she didn’t take the time to listen to us over and over again saying we want to be parents. It saddens me deeply that this ride has changed tracks yet again but the silver lining in all of this is we may finally have answers for my wife and she can be restored to normal health again. I’m sorry if my post seems to jump around and not make a whole lot of sense. I am finding it very hard to put this all into words but this is my best attempt. Until next time

 

Steffan

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9 thoughts on “When the Train Changes Tracks Again…

      1. I’m so sorry. It’s horrible that your OB/GYN didn’t follow your wishes. To me, that seems like malpractice. I will continue to pray for you. My husband and I are at our own place in our infertility journey and it’s never easy. Love to you both.❤️

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  1. I’m so sorry to hear this Steffan. I am, however, very proud to call you a friend. You’ve been a rock for Trenae. I aspire to be the kind of spouse you are to your wife to my wife who also suffers from endometriosis. I will keep praying for you both just as I have been. Best of luck.

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  2. I’m so sorry Steffan, I can’t imagine what you two are going through, but I commend you both for staying strong. I hope Trenae is out of pain soon. Keeping you both in my thoughts for a pain free Trenae and pain free adoption process, if that’s what it comes to. Everything will work out in the end. Stay positive, I know it’s hard. xoxo

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  3. I’m so sorry Steffan and Trenae. I can’t even begin to imagine what you’re going through. I feel so much love and respect for you both every time I read your blog. Stay strong and positive and hopefully you will have answers and relief to your pain soon! Xoxo

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