A Tale of Two Fears…Well Maybe a Few More…

It’s 12:30 AM and I’ve been up for about an hour now, tossing and turning. You see, officially today, since the clock has passed midnight, Steffan and I have our multitude of doctors appointments to figure out 1. my medical conditions as my pain has only gotten worse since an oblation surgery I had in August to which my surgeon has no reasoning for, and 2. our plan with possibly moving forward with the implantation of a gifted embryo if I’m healthy enough to carry it.

Since school started this year, I’ve been dealing with pain every day. I’m doing my best to manage it, but even two “post-op” surgical appointments and a trip to the ER haven’t given me any relief. I’ve stopped eating dinner, because I can’t keep it down, and I got to the point yesterday where I text my husband in the middle of the day (10:30 AM) because I didn’t even go to lunch because I sat down from the pain and couldn’t get up again; I was afraid I was going to have to leave school. At 11, I put my happy face back on for my kids, but inside, I was dying.

Currently I’m sitting in my living room, heating pad on, surrounded by my two “large and in charge” furry protectors…both of whom are sound asleep and snoring. Jerks. The mini-furry protector is sound asleep upstairs…probably asleep on my side of the bed…again, jerk.

All I can say is, God love my husband. While I was at school yesterday, about to fall down, he was feverishly doing research on the specialist I am to see tomorrow, the possibilities of my disease and what it may actually be instead. For years, I’ve been treated for endometriosis, a disease that typically affects the ovaries, causes pain and often infertility…all things I’ve gone through since before college (call my mom, she can tell you). I’ve had surgery for this three times since college and yet, no relief. I go through stages where I’m ready to just throw in the towel and give up. After my first surgery (right after college), I was engaged to a very different man, who told me “I just wasn’t a good breeder”. Needless to say that didn’t work out. And thank God, otherwise I would have never met the man who continuously fights for me day in and day out. Steffan is the one who has done the research on not endometriosis, but something called adenomyosis. It’s similar to endo, but much more difficult to find unless you are specialized in looking for it; it isn’t even listed on Women’sHealth.gov — go figure. But don’t worry, anorexia and acne are…because that’s what we suffer from. Right ladies? He looked at the symptoms and he looked at me and the two matched more fittingly.

I guess what I’m trying to say in my tired, yet insomniatic state, is that I’m so happy to have someone in my corner who will fight for me when I’m afraid and ready to give up. It’s hard to fight when your tired and in pain. It’s also hard to fight when everyone you’ve asked for help, can’t give you any answers. On one hand, I’m hoping tomorrow I get an answer because then I’ll finally be able to get the right treatment. On the other hand, I’m scared I’ll be let down again by yet another doctor who still doesn’t know what’s wrong or where this pain is coming from. I know they call it “practicing” medicine, but could I stop being the pin cushion for a little while? It’s sucks when you can’t sneeze, cough, twist, or do other daily activities, like, I don’t know, teach your students, without wanting to double over in pain. I’m 32 and I just want to be healthy.

And to put this blog to bed…hopefully metaphorically and literally, there’s the embryo in the mix. That appointment is tomorrow too, as if one doctor a day isn’t enough…the what if game is spinning through my head at a whirlwind pace. What if he says I can’t carry because of these conditions? What if I’ve missed my window to carry a child? I go back and forth with these questions; tell myself I’m okay if that’s the case, then fall apart because I can’t do what comes so easily to others.

Forgive me if this is a sappy post. I’m really nervous. We have to be in Annapolis in seven hours and I don’t know if I’ll be able to sleep a wink tonight. Guess it’s Netflix for me tonight…and time to turn the heating pad up to full blast. G’night y’all. Wish us luck.

~Trenae

 

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2 thoughts on “A Tale of Two Fears…Well Maybe a Few More…

  1. I feel your pain. I have a follow-up with my neurosurgeon in 7 hours and I can’t sleep a wink. I know something is still wrong based on the symptoms I’ve been having after my brain tumor removal four weeks ago, but I’m so scared he’s going to say it’s all normal and not run any tests. From my research I should be on replacement hormones. I hope everything goes well for you today, sleep deprivation aside!❤️

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  2. Good luck on your appointment! I wish you all the best. You’re right, it is completely nerve-wracking to know something is wrong and not have anyone understand because they can’t see it or a test doesn’t pick it up right away.

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